CONFERENCE and bad news...then good news (ups and downs again)

2-18-10

We had a conference about Riley today with the whole family. They told us that she has a level 4 brain bleed on BOTH sides and that if we decide to continue treatment (and not de-escalate care and let her die) that there is no telling what the extent of her disabilities will be until she is much older. They said she might not ever be able to feed herself or walk or talk but we all said WHO CARES!

2-21-10

Both girls are 13 inches long now!

Riley weighs 2 lbs 6 oz

Liz weighs 2 lbs 5 oz

and both girls are eathing 8 cc every 3 hours!

PROGRESS!!!!

2-22-10

Riley's liver is swolen and her liver enzymes are "wierd" (dont you love doctor terms)

2-23-10

Riley pulled her breathing tube out today (guess she was tired of it) so they put her on a CPAP to see how she would do and she did great! no more vent riley!

COME ONE ELIZABETH! get stronger!

2-24-10

6 weeks old! (30 weeks gestation)

Riley is now eating 20 cc!!! Liz is now eating 14 cc!!

2-25-10

Now they think Liz is having siezures :/ they will do an EEG to make sure.

Riley is getting sent back to the hospital by mommy tomorrow!

2-26-10

Riley is back at the original hospital today!

Liz's EEG was normal! they tried to switch her to a conventional vent but she couldn't handle it so they had to switch her right back to the Jet vent :/

2-28-10

Got to hear Riley cry for the first time today!!!!! (which was SO exciting at that point in time)

Liz is still at the other hospital but slowly getting better. They gave her steroid shots to help out.